RT
Rachel Thompson
RD-Connect data and communications platform manager (Genetics not elsewhere classified)
Newcastle, UK
Publications
- Mapping the differences in care for 5,000 Spinal Muscular Atrophy patients, a survey of 24 national registries in North America, Australasia and Europe. DOI: 10.1007/s00415-013-7154-1
- Patient Registries and Trial Readiness in Myotonic Dystrophy - TREAT-NMD/Marigold International Workshop Report DOI: 10.1016/j.nmd.2009.08.009