Paul Wicks

Publications

• Innovations in e-health
• The Virtuous Circle of the Quantified Self: A Human Computational Approach to Improved Health Outcomes
• Correction of: Exploring Concordance of Patient-Reported Information on PatientsLikeMe and Medical Claims Data at the Patient Level
• ALSUntangled No. 19: Sodium chlorite.
• Anatomy of a Woebot® (WB001): agent guided CBT for women with postpartum depression
• Safety of Triage Self-assessment Using a Symptom Assessment App for Walk-in Patients in the Emergency Care Setting: Observational Prospective Cross-sectional Study
• Safety of Triage Self-assessment Using a Symptom Assessment App for Walk-in Patients in the Emergency Care Setting: Observational Prospective Cross-sectional Study (Preprint)
• Optimization of Patient Flow in Urgent Care Centers Using a Digital Tool for Recording Patient Symptoms and History: Simulation Study
• Rethinking the locked-in state for people with ALS
• Online randomised trials with children: A scoping review
• Opportunities and counterintuitive challenges for decentralized clinical trials to broaden participant inclusion
• ALSUntangled #62: vitamin C
• Actionable absolute risk prediction of atherosclerotic cardiovascular disease: a behavior-management approach based on data from 464,547 UK Biobank participants
• Correction: The multiple sclerosis rating scale, revised (MSRS-R): Development, refinement, and psychometric validation using an online community
• Erratum: Hypothesis: Higher prenatal testosterone predisposes ALS patients to improved athletic performance and manual professions (Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration (2012) 13 (251-253))
• Evaluation of an Online Platform for Multiple Sclerosis Research: Patient Description, Validation of Severity Scale, and Exploration of BMI Effects on Disease Course
• ALS untangled 15: Coconut oil
• ALS untangled no. 17: "When ALS Is Lyme"
• ALSUntangled No. 16: Cannabis
• Exploring Concordance of Patient-Reported Information on PatientsLikeMe and Medical Claims Data at the Patient Level
• The real-world patient experience of fingolimod and dimethyl fumarate for multiple sclerosis
• Getting stem cell patients 'on the grid'
• Patients’ Utilization and Perception of an Artificial Intelligence–Based Symptom Assessment and Advice Technology in a British Primary Care Waiting Room: Exploratory Pilot Study
• ALSUntangled no. 18: apoaequorin (Prevagen).
• Feasibility of a web-based survey of hallucinations and assessment of visual function in patients with Parkinson's disease.
• ALS Untangled No. 20: the Deanna protocol.
• Subjects no more: what happens when trial participants realize they hold the power?
• Quality of life in organ transplant recipients participating in an online transplant community.
• ALSUntangled No. 22: Propofol.
• Patient-Reported Outcome Measures in Safety Event Reporting: PROSPER Consortium guidance.
• ALS Untangled No. 21: Fecal transplants.
• Correction: The multiple sclerosis rating scale, revised (MSRS-R): development, refinement, and psychometric validation using an online community.
• Quantifying short-term dynamics of Parkinson's disease using self-reported symptom data from an Internet social network.
• Severe loss of appetite in amyotrophic lateral sclerosis patients: online self-assessment study.
• ALS untangled No. 17: "when ALS is lyme".
• ALSUntangled No. 14: Mototab.
• Scaling PatientsLikeMe via a �Generalized Platform� for Members with Chronic Illness: Web-Based Survey Study of Benefits Arising (Preprint)
• Scaling PatientsLikeMe: Web-based Survey of Benefits Arising for Members with Chronic Illness Using a �Generalized� Platform
• Scaling PatientsLikeMe via a “Generalized Platform” for Members with Chronic Illness: Web-Based Survey Study of Benefits Arising
• Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community (Preprint)
• A Modular Health-Related Quality of Life Instrument for Electronic Assessment and Treatment Monitoring: Web-Based Development and Psychometric Validation of Core Thrive Items (Preprint)
• A Modular Health-Related Quality of Life Instrument for Electronic Assessment and Treatment Monitoring: Web-Based Development and Psychometric Validation of Core Thrive Items
• Lunasin does not slow ALS progression: results of an open-label, single-center, hybrid-virtual 12-month trial
• Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community
• Patients’ Utilization and Perception of an Artificial Intelligence–Based Symptom Assessment and Advice Technology in a British Primary Care Waiting Room: Exploratory Pilot Study (Preprint)
• ALSUntangled 59: Tamoxifen
• Evidence of Human-Level Bonds Established With a Digital Conversational Agent: Cross-sectional, Retrospective Observational Study
• Evidence of Human-Level Bonds Established With a Digital Conversational Agent: Cross-sectional, Retrospective Observational Study (Preprint)
• Optimization of Patient Flow in Urgent Care Centers Using a Digital Tool for Recording Patient Symptoms and History: Simulation Study (Preprint)
• Beyond the Therapist’s Office: Merging Measurement-Based Care and Digital Medicine in the Real World
• E-mental health: A medium reaches maturity
• LETTER TO THE EDITOR
• Information wants to be free, but when it comes to clinical trials can we afford to let it be?
• Excessive yawning is common in the bulbar-onset form of ALS
• Three soccer playing friends with simultaneous amyotrophic lateral sclerosis
• Modifiable barriers to enrollment in American ALS research studies
• Hypothesis: Higher prenatal testosterone predisposes ALS patients to improved athletic performance and manual professions
• Letter to the Editor: Quality of mental health information on Wikipedia
• Pathological gambling amongst Parkinson's disease and ALS patients in an online community (PatientsLikeMe.com)
• Sharing health data for better outcomes on patientslikeme
• ALSUntangled No. 10: Luteolin and Lutimax.
• ALSUntangled No. 9: Blue-green algae (Spirulina) as a treatment for ALS.
• ALSUntangled No. 8: Low dose naltrexone for ALS.
• PatientsLikeMe: Consumer health vocabulary as a folksonomy.
• ALS patients request more information about cognitive symptoms
• Online assessment of ALS functional rating scale compares well to in-clinic evaluation: A prospective trial
• Patient assessment of physician performance of epilepsy quality-of-care measures
• Reassessing received wisdom in ALS - pain is common when studied systematically
• Perceived benefits of sharing health data between people with epilepsy on an online platform
• Mining online social network data for biomedical research: A comparison of clinicians' and patients' perceptions about amyotrophic lateral sclerosis treatments
• The multiple sclerosis rating scale, revised (MSRS-R): Development, refinement, and psychometric validation using an online community
• Abandoned HealthSpace: Sharing access might increase engagement
• Patient-reported outcomes as a source of evidence in off-label prescribing: Analysis of data from PatientsLikeMe
• Use of an online community to develop patient-reported outcome instruments: The multiple sclerosis treatment adherence questionnaire (MS-TAQ)
• Abandoned HealthSpace. Sharing access might increase engagement.
• Prevalence of depression in amyotrophic lateral sclerosis and other motor disorders
• Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm
• Concordance between site of onset and limb dominance in amyotrophic lateral sclerosis
• Changes in memory for emotional material in amyotrophic lateral sclerosis (ALS)
• The potential research impact of patient reported outcomes on osteogenesis imperfecta
• Erratum: Measuring function in advanced ALS: Validation of ALSFRS-EX extension items (European Journal of Neurology (2009) 16 (353))
• Measuring function in advanced ALS: Validation of ALSFRS-EX extension items
• SOD1 and cognitive dysfunction in familial amyotrophic lateral sclerosis
• The power of social networking in medicine
• How the Social Web Supports patient experimentation with a new therapy: The demand for patient-controlled and patient-centered informatics.
• Neuronal loss associated with cognitive performance in amyotrophic lateral sclerosis: An (11C)-flumazenil PET study
• PatientsLikeMe: Consumer health vocabulary as a folksonomy.
• Prevalence of depression in a 12-month consecutive sample of patients with ALS (European Journal of Neurology (2007) 14, (993-1001))
• A rapid screening battery to identify frontal dysfunction in patients with ALS [7]
• Prevalence of depression in a 12-month consecutive sample of patients with ALS
• Recruiting your 'control' group Linchpin or afterthought?
• Absence of cognitive, behavioral, or emotional dysfunction in progressive muscular atrophy
• ALSUntangled 13: Bee venom.
• ALSUntangled No. 11: Nu Tech Mediworld.
• How the Social Web Supports patient experimentation with a new therapy: The demand for patient-controlled and patient-centered informatics.
• Three soccer playing friends with simultaneous amyotrophic lateral sclerosis.
• The profile of cognitive, behehavioural and emotional change within MND [motor neurone disease].
• So You Want to Build Your Disease’s First Online Patient Registry: An Educational Guide for Patient Organizations Based on US and European Experience
• A new diagnostic entity must enable earlier treatment in gene carriers
• Rigorous and rapid evidence assessment in digital health with the evidence DEFINED framework
• ALSUntangled #71: Nuedexta
• Common Practices for Sociodemographic Data Reporting in Digital Mental Health Intervention Research: A Scoping Review
• RETRACTED ARTICLE: Anatomy of a Woebot® (WB001): agent guided CBT for women with postpartum depression
• ALSUntangled #73: Lion’s Mane
• Common practices for sociodemographic data reporting in digital mental health intervention research: a scoping review