sj-pdf-1-trd-10.1177_26330040211022033 – Supplemental material for They’ve been BITTEN: reports of institutional and provider betrayal and links with Ehlers-Danlos Syndrome patients’ current symptoms, unmet needs and healthcare expectations

Langhinrichsen-Rohling, Jennifer; Lewis, Chrystal L.; McCabe, Sean; Lathan, Emma C.; Agnew, Gabrielle A.; Selwyn, Candice N.; Gigler, Margaret E.

doi:10.25384/SAGE.17021899.v1

sj-pdf-1-trd-10.1177_26330040211022033.pdf (531.3 kB)

sj-pdf-1-trd-10.1177_26330040211022033 – Supplemental material for They’ve been BITTEN: reports of institutional and provider betrayal and links with Ehlers-Danlos Syndrome patients’ current symptoms, unmet needs and healthcare expectations

journal contribution

posted on 2021-11-16, 07:32 authored by Jennifer Langhinrichsen-Rohling, Chrystal L. Lewis, Sean McCabe, Emma C. Lathan, Gabrielle A. Agnew, Candice N. Selwyn, Margaret E. Gigler

Supplemental material, sj-pdf-1-trd-10.1177_26330040211022033 for They’ve been BITTEN: reports of institutional and provider betrayal and links with Ehlers-Danlos Syndrome patients’ current symptoms, unmet needs and healthcare expectations by Jennifer Langhinrichsen-Rohling, Chrystal L. Lewis, Sean McCabe, Emma C. Lathan, Gabrielle A. Agnew, Candice N. Selwyn and Margaret E. Gigler in Therapeutic Advances in Rare Disease