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Including People Who Use Augmentative and Alternative Communication in Qualitative Research: Can You Hear Us?

journal contribution
posted on 2024-05-02, 01:52 authored by M Walsh, I Harman, P Manning, B Ponza, S Wong, B Shaw, D Sellwood, Kate AndersonKate Anderson, D Reddihough, M Wallen
People who use augmentative and alternative communication (AAC) are frequently excluded from research, yet their voices can significantly enhance the applicability, acceptability, and translation of qualitative research findings. Accessible and adapted research methods welcome and empower participants who use AAC, and enable meaningful involvement. In this article, we describe the collaborative development of a framework to conceptualise inclusive research and aspects of an accompanying inclusive research toolkit. The framework identifies balancing power as a critical factor, primarily achieved by ensuring that research methods and materials are accessible to people who use AAC. We propose that this is achieved through three interacting elements: collaboration with AAC users, skills and knowledge to achieve accessibility, and ensuring adequate time is available to achieve involvement. We identify five areas where applying these elements has impact for AAC users: recruiting AAC users, working with communication supporters, adapting research methods, securing ethics approval, and consent. In presenting the framework, we demonstrate how qualitative researchers can foster a research environment that values and actively includes AAC users, ultimately advancing the field towards more comprehensive and inclusive research practices. While our work is situated in the cerebral palsy and AAC communities, our proposed framework and toolkit can be applied by researchers seeking perspectives from individuals with communication disabilities more broadly. We have created a corresponding plain language video of this article as an additional means of optimising accessibility of the content. See supplemental material .

History

Journal

International Journal of Qualitative Methods

Volume

23

Season

January-December 2024

Article number

ARTN 16094069241234190

Pagination

1-13

Location

London, Eng.

ISSN

1609-4069

eISSN

1609-4069

Language

eng

Publication classification

C1 Refereed article in a scholarly journal

Publisher

SAGE Publications