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Data flow protocol template.

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posted on 2022-01-21, 18:28 authored by Samantha S. R. Crossfield, Kieran Zucker, Paul Baxter, Penny Wright, Jon Fistein, Alex F. Markham, Mark Birkin, Adam W. Glaser, Geoff Hall

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A data flow process for confidential data and its application in a health research project
PLOS ONEPLOS ONE

Categories

  • Biotechnology
  • Information Systems not elsewhere classified
  • Mathematical Sciences not elsewhere classified
  • Marine Biology
  • Cancer
  • Science Policy
  • Infectious Diseases

Keywords

provides supporting informationpatient reported outcomesmake major contributionsgenerates pseudonymous datasetscomprehensive patient recordsprocesses data lawfullydata protection rightsdata flow protocoldata flow processavailable via datalinked healthcare dataapproach used individualethical best practiceusing healthcare datadata flow endethical concerns relatinganonymous research datasetdata providersconfidential datageneral practicereversibly linkedirreversibly linkedxlink ">two providerssuccessfully appliedsteps involvedset approachservice improvementrendered irreversiblereceived ethicopaper describesknowledge generationeffective pseudonymisationdataset creationclear stepsclear approachacademic review193 patients

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CC BY 4.0CC BY 4.0

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