Additional file 1 of Qualitative interviews to improve patient-reported outcome measures in late-onset Pompe disease: the patient perspective

Hamed, Alaa; An Haack, Kristina; Gwaltney, Chad; Baranowski, Eileen; Stewart, Andrew; Krupnick, Robert; Tyler, Margaret; Sparks, Susan; Paty, Jean

doi:10.6084/m9.figshare.16800319.v1

13023_2021_2067_MOESM1_ESM.docx (16.9 kB)

Additional file 1 of Qualitative interviews to improve patient-reported outcome measures in late-onset Pompe disease: the patient perspective

journal contribution

posted on 2021-10-13, 03:24 authored by Alaa Hamed, Kristina An Haack, Chad Gwaltney, Eileen Baranowski, Andrew Stewart, Robert Krupnick, Margaret Tyler, Susan Sparks, Jean Paty

Additional file 1: Change in text format from third round of interviews.

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Sanofi Genzyme

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Late-onset Pompe disease PROs Conceptual model Symptoms Patient experience Functional impacts Lysosomal storage disorders

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Additional file 1 of Qualitative interviews to improve patient-reported outcome measures in late-onset Pompe disease: the patient perspective

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Sanofi Genzyme

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