Family caregivers articulating the social network of a child with special health care needs

ABSTRACT In Brazil, studies rarely address the social network of a child with special health care needs (CSHCN). Objective: the study sought to characterize the social network of the child and analyze the role of the family in its creation. Method: a qualitative approach was developed through five dynamics (Speaking Map) based on the creative sensitive method, with five groups of families (12 participants) in their homes. Results: the critical discourse analysis of the caregivers (grandparents, siblings and neighbors) showed that the mother plays the main role in articulating the social network, with its points being linked by the hospital, primary and rehabilitation care, household, school, etc. Familial care becomes more visible at home and within the community. Conclusion: with the insufficient public policy that articulating healthcare facilities for CSHCN in the community, family members shape a social network characterized by a dense and fluid mesh.