SR
Publications
- The TREAT-NMD care and trial site registry: an online registry to facilitate clinical research for neuromuscular diseases. DOI: 10.1186/1750-1172-8-171
- CARE-NMD: Evaluation and implementation of relevant health related QoL instruments in Duchenne muscular dystrophy ISSN: 0960-8966
- CARE-NMD: Improving care for Duchenne muscular dystrophy ISSN: 0960-8966
- CARE-NMD: The role of patient registries in an international study of care in Duchenne muscular dystrophy ISSN: 0960-8966
- Current care practice in Duchenne Muscular Dystrophy in Europe - results of the CARE-NMD cross-sectional survey ISSN: 0960-8966
- Monitoring care practices for Duchenne Muscular Dystrophy - the CARE-NMD project ISSN: 0960-8966