Information Leaflet for Parents (FQOL-S).docx

Study Title: Exploring the Wellbeing Needs of Parents Raising Autistic Individuals with Learning Difficulties

Principal Researcher: Ezaeza Gaby Sanz Galvan, Graduate Teaching Assistant, Edge Hill UniversityThis study aims to delve into the specific wellbeing needs of parents raising autistic individuals with learning difficulties. Led by Ezaeza Gaby Sanz Galvan, Graduate Teaching Assistant at Edge Hill University, along with Dr. Vicky Karkou and Dr. Supritha Aithal, this research seeks to identify the challenges and support systems affecting these parents' wellbeing.

Invitation Criteria:Parents of autistic children or adults with learning difficulties are invited to participate if they can read and write in English. The study aims to recruit 100 parents from early 2024 to mid-2024.

Participation Process:Participants will answer eligibility questions, review project details, and complete the Family Quality of Life Survey (FQOL-S) comprising five domains. An optional interview opportunity is available upon survey completion, with interviewees entered into a prize draw for a £50 Amazon voucher.

Benefits and Confidentiality:While direct benefits may not apply, participation contributes to understanding parental wellbeing needs and informs tailored support strategies. Confidentiality is maintained following GDPR regulations.

Support and Contact:For independent inquiries, contact Edge Hill University Research Office. Post-study support resources are available from organizations like The Samaritans, SHOUT, and MIND.

Choice and Data Usage:Participation is voluntary, and participants can withdraw at any time without penalty. Data collected is anonymous and used solely for research purposes.This study's results will be shared in academic forums while ensuring participant anonymity. Participants are encouraged to engage in this valuable research endeavor to enhance support strategies for parents of autistic individuals with learning difficulties.