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Additional file 1: of Quantitative analysis of a rare disease network’s international contact database and E-repository provides insights into biobanking in the electronic consent era

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posted on 2019-07-11, 05:00 authored by Alexander Suarez, Curran Reilly, David Fajgenbaum
Examples of webpage screenshots, email communication, tissue donation forms, electronic consents, and E-repository enrollment documents. (PDF 1553 kb)

Funding

Castleman Disease Collaborative Network

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Quantitative analysis of a rare disease network’s international contact database and E-repository provides insights into biobanking in the electronic consent era
Orphanet Journal of Rare DiseasesOrphanet Journal of Rare Diseases

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Keywords

Castleman diseaseBiorepositoryElectronic consentContact databaseElectronic repositoryEnrollment strategy

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CC BY + CC0

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