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The quality of life of children with neurodevelopmental disorders and their parents during the Coronavirus disease 19 emergency in Japan

Version 2 2020-09-29, 01:12
Version 1 2020-09-28, 04:28
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posted on 2020-09-29, 01:12 authored by Riyo UedaRiyo Ueda, Takashi Okada, Yosuke Kita, Yuri Ozawa, Hisami Inoue, Mutsuki Shioda, Yoshimi Kono, Chika Kono, Yukiko Nakamura, Kaoru Amemiya, Ai Ito, Nobuko Sugiura, Yuichiro Matsuoka, Chinami Kaiga, Masaya Kubota, Hiroshi Ozawa

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Figure 1. Factors affecting QOL during the COVID-19 stay-at-home period

Children with worsening sleep patterns and mothers with usual working patterns, were two factors of a reduced family QOL. In spite of these factors, some families were able to maintain a healthy quality of life with reduced parenting stress, less parental depression and anxiety, and milder internalizing and externalizing symptoms in the children with NDDs. Conversely, increased parenting stress, a severe depressive state and anxiety in parents, and severe internalizing and externalizing symptoms in children deteriorated the QOL of children with NDDs and their parents. Internalizing and externalizing symptoms in children were associated with parental stress, a depressive state, and anxiety in parents.


Funding

Meiji Yasuda Mental Health Foundation, Japan, [grant number 2020-1-007 to R.U.]

Intramural Research Grant for Neurological and Psychiatric Disorders of NCNP, Japan [1-4 to T.O.].

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