Environmental Scan of Repositories of Clinical Research Data: How Far Have We Got With Public Disclosure of Trial Data?

2016-11-22T20:46:31Z (GMT) by Karmela Krleza-Jeric Iain Hrynaszkiewicz
<p>Clinical research data sharing is expected to decrease the burden on research subjects, enabling more efficient and reliable research; promote innovations and entrepreneurship; and facilitate knowledge synthesis, discovery and translation that could ultimately inform clinical decision making.</p> <p>Data repositories are key elements for achieving broad data sharing but in clinical research there is no repository for raw data which covers a variety of medical disciplines. </p><p>Furthermore, to our knowledge there is no wide agreement on the standards, best practices and essential features of clinical data repositories. </p><p>The environmental scan aims to produce comprehensive information on the features and practices of data repositories with interests in clinical data disclosure.</p>