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Additional file 1: of Using digital technologies to engage with medical research: views of myotonic dystrophy patients in Japan

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posted on 2016-08-24, 05:00 authored by Victoria Coathup, Harriet Teare, Jusaku Minari, Go Yoshizawa, Jane Kaye, Masanori Takahashi, Kazuto Kato
Patient Survey in English. (PDF 92 kb)

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Japan Society for the Promotion of Science

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    BMC Medical Ethics

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    Keywords

    Patient engagementDynamic consentElectronic health recordsMyotonic dystrophyDigital technologyParticipant centric initiativesPatient privacyData sharingPatient viewsPatient perspectives

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    CC BY + CC0

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