TY - DATA T1 - Drawing pain for children with sickle cell anemia: the pain that hurts, really hurts PY - 2017/12/27 AU - Lívia Lopes Custódio AU - Ilse Maria Tigre de Arruda Leitão AU - Ilvana Lima Verde Gomes AU - Layza Castelo Branco Mendes UR - https://scielo.figshare.com/articles/dataset/Drawing_pain_for_children_with_sickle_cell_anemia_the_pain_that_hurts_really_hurts/5734182 DO - 10.6084/m9.figshare.5734182.v1 L4 - https://ndownloader.figshare.com/files/10090734 L4 - https://ndownloader.figshare.com/files/10090749 L4 - https://ndownloader.figshare.com/files/10090794 L4 - https://ndownloader.figshare.com/files/10090818 L4 - https://ndownloader.figshare.com/files/10090845 KW - Child KW - Pain KW - Sickle cell anemia N2 - ABSTRACT BACKGROUND AND OBJECTIVES: Painful crises are part in the evolution of sickle cell anemia, is the more dramatic picture of variable intensity and location, caused by chronic hemolysis and vaso-occlusion, which alter the daily life of the patients. The objective of this study was to understand, by means of drawing, the repercussions and the coping strategies in situations caused by the painful crises of the sickle cell anemia, from the children’s perspective. METHODS: Exploratory, qualitative study, carried out in a pediatric referral hospital of Ceará, with five children diagnosed with sickle cell anemia. Data collection was performed from May to July 2016, by means of observations and drawings-story by Trinca. In the analysis, it was used the analysis of drawings content by Coutinho. RESULTS: Two categories emerged: the pain that hurts and coping with pain. Every child identified its bigger meaning, evoking the repercussions of pain as the most striking element and more present in its life. CONCLUSION: In face of the sufferings confronted by children with sickle cell anemia, it is necessary to create strategies that promote the implementation of public policies to prevent crises and treat the disease, modifying the course of the disease and improving the quality of life. ER -