10.6084/m9.figshare.5720398.v1
Rosane Maria dos Santos
Rosane Maria dos
Santos
Giselle Massi
Giselle
Massi
Mariluci Hautsch Willig
Mariluci Hautsch
Willig
Luciana Branco Carnevale
Luciana Branco
Carnevale
Ana Paula Berberian
Ana Paula
Berberian
Márcia Helena de Souza Freire
Márcia Helena de Souza
Freire
Rita Tonocchi
Rita
Tonocchi
Telma Pelaes de Carvalho
Telma Pelaes de
Carvalho
Children and adolescents with cerebral palsy in the perspective of familial caregivers
SciELO journals
2017
Cerebral Palsy
Child Care
Caregivers
2017-12-20 03:05:09
Dataset
https://scielo.figshare.com/articles/dataset/Children_and_adolescents_with_cerebral_palsy_in_the_perspective_of_familial_caregivers/5720398
<div><p>ABSTRACT Objective: to analyze family caregivers’ perceptions on care delivered to children and adolescents presented with cerebral palsy. Methods: a quantitative, qualitative study developed with 50 family caregivers of children and adolescents diagnosed with cerebral palsy. Data collection was carried out by means of an interview with semi-open questions whose answers were analyzed based on the Content Analysis. Results: family members’ accounts on care delivered to children and adolescents with cerebral palsy are mostly connected with positive feelings, such as love, happiness, privilege and overcoming. However, for a significant share of these family members, their own quality of life depends on the cared subject’s health condition, blurring the distinction between their own needs and those of the cared subjects. Conclusions: health professionals need to recognize the importance of caregivers’ health promotion as a major condition to keep caring. In this dimension, they may contribute by helping caregivers identify their own health needs.</p></div>