10.6084/m9.figshare.5589913
Jane V. Simmonds
Jane V.
Simmonds
Anthony Herbland
Anthony
Herbland
Alan Hakim
Alan
Hakim
Nelly Ninis
Nelly
Ninis
William Lever
William
Lever
Qasim Aziz
Qasim
Aziz
Mindy Cairns
Mindy
Cairns
Exercise beliefs and behaviours of individuals with Joint Hypermobility syndrome/Ehlers–Danlos syndrome – hypermobility type
Taylor & Francis Group
2017
Joint Hypermobility syndrome
Ehlers–Danlos syndrome – hypermobility type
exercise beliefs
exercise behaviour
physiotherapy
2017-11-10 11:15:04
Journal contribution
https://tandf.figshare.com/articles/journal_contribution/Exercise_beliefs_and_behaviours_of_individuals_with_Joint_Hypermobility_syndrome_Ehlers_Danlos_syndrome_hypermobility_type/5589913
<p><b>Purpose:</b> To explore exercise beliefs and behaviours of individuals with Joint Hypermobility syndrome/Ehlers–Danlos syndrome – hypermobility type and to explore patient experiences of physiotherapy.</p> <p><b>Methods:</b> A cross sectional questionnaire survey design was used to collect quantitative and qualitative data from adult members of the Hypermobility Syndromes Association and Ehlers–Danlos Syndrome Support UK. Descriptive and inferential statistics were used to analyse the data. Qualitative data was analysed thematically.</p> <p><b>Results:</b> 946 questionnaires were returned and analysed. Participants who received exercise advice from a physiotherapist were 1.75 more likely to report high volumes of weekly exercise (odds ratio [OR] = 1.75, 95% confidence interval [CI] = 1.30–2.36, <i>p</i> < 0.001) than those with no advice. Participants who believed that exercise is important for long-term management were 2.76 times more likely to report a high volume of weekly exercise compared to the participants who did not hold this belief (OR = 2.76, 95% CI = 1.38–5.50, <i>p</i> = 0.004). Three themes emerged regarding experience of physiotherapy; physiotherapist as a partner, communication – knowledge, experience and safety.</p> <p><b>Conclusion</b>: Pain, fatigue and fear are common barriers to exercise. Advice from a physiotherapist and beliefs about the benefits of exercise influenced the reported exercise behaviours of individuals with Ehlers–Danlos syndrome – hypermobility type in this survey.Implications for rehabilitation</p><p>Exercise is a cornerstone of treatment for Ehlers–Danlos syndrome/Ehlers–Danlos syndrome – hypermobility type.</p><p>Pain, fatigue and fear of injury are frequently reported barriers to exercise.</p><p>Advice from physiotherapists may significantly influence exercise behaviour.</p><p>Physiotherapists with condition specific knowledge and good verbal and non-verbal communication facilitate a positive therapeutic experience.</p><p></p> <p>Exercise is a cornerstone of treatment for Ehlers–Danlos syndrome/Ehlers–Danlos syndrome – hypermobility type.</p> <p>Pain, fatigue and fear of injury are frequently reported barriers to exercise.</p> <p>Advice from physiotherapists may significantly influence exercise behaviour.</p> <p>Physiotherapists with condition specific knowledge and good verbal and non-verbal communication facilitate a positive therapeutic experience.</p>